Wednesday, March 26, 2008

Tough girl has anaphylactic allergies, to

Eggs

Orange (what)

Avocado

Bananas

Aspirin

Penicillin

Eggplant (ew, kiddo is not missing much.)

pineapple

strawberries;

Latex

That’s just the ones that make her throat close up, not the ones that make her have full body hives. Saints preserve us. She used to be allergic to milk too, but she outgrew it.

Upon hearing I was journaling about her, Tough girl demanded to know what I was writing, and then stomped off, muttering something angry about hating eggs. Yeah, honey, I’m with you on that one.

Here’s the weird thing. Until she spent that Christmas in the hospital, Tough Girl was as tough as nails. She used to eat anything I put it front of her like a champ. Then in the hospital, she got a rash on her arm from the latex tape that kept her arm splint on. Then suddenly she was getting hives from the touch of a glove. And so on…

Today she is home from school (again, I started writing this yesterday) because of what happened last week. I am so angry and thrown off by what happened. I hope someone is reading this who can give me some advice.


What anaphylaxis looks like

otherwise titled

Why mommy looks like a crazy person with her handi-wipes.

Otherwise entitled

NEVER GIVE MY DAUGHTER FOOD MEANS NOT EVEN CANDY

I am standing in the bathroom, doing TG’s nails. Everything is fine.

She is chattering away about school, about a dog she saw outside the bus window, about something she saw on TV. I am busy trying to listen to the sound of the dryer finally breaking down to really be having an in depth conversation about what’s in a Krabby Patty, or the moral implications of an anthropomorphic sea creature eating fish. In other words, just another Friday night. I leave Tough girl in the bathroom while I go check on her sister.

I’m just getting Sunshine comfortable in bed when I hear something. It’s my five year old coughing. Not just a normal cough, but a persistent

*cough, gag…cough…gag*

I head back to the bathroom.
She has her bright red, hivey little hands clamped firmly over her mouth, like a cat who’s got a canary.

Oh god, oh god, she has something in her mouth.

My heart sinks.

“Spit it out spit it out spit it out!”

She swallows it. I waste a good thirty seconds panicking. Thirty seconds doesn’t seem like a lot, but it is when you’re holding an enormous needle in your hand. Finally, I snap out of it, and grab my daughter by the leg.
Epi-pen in the thigh…

It jams.

Oh my God. “Stay here!” I run for the second one, which is in her bedroom, trip over god knows what and twist my ankle, I don’t even feel it.

Despite being in danger of her airway closing off, my daughter is not going down without a fight. When she sees needle number two, Tough Girl takes off and dives under the bed. Now I have a possibly about to die kid hiding from me, screaming that she hates me.

We have entered the pleading stage, because no way I can reach her without taking an axe to the bed.

“Come on, honey. I’m not mad at you. Come on out of there. Okay, mommy’s sorry.” (too scared to cry, too scared to do anything but try and calm my daughter down)

“You’re not *wheeze*getting me with that *wheeze* thing!”

“I’m not gonna get you with anything.” She knows I am lying.

“You’re…a…jerk! Mommy…is a…” She doesn’t finish the sentence.

You know those stories about mothers who lift a car off their infants?

I somehow turned the entire bed over, and now I am dragging her out by the foot. The neighbor underneath us bangs on the ceiling with a broom in response. Yeah, guy. Next time I will try and be more quiet when saving my daughter’s life.
I am holding my daughter, and trying to talk to the 911 operator at the same time. I don’t even remember the conversation, but thank god, I had a second epi-pen. This time it works.

Instant recovery. Hives disappear. Breathing returns to normal. It’s like it never happened, and as she lies her head down on my knee, my daughter pukes a rainbow of colors into my lap.

It’s a starburst. Her teacher gave her a starburst for cleaning up the classroom like a good girl. She took it because she trusted her teacher. She thinks I am mean for taking away her treat, and for stabbing her in the leg. Still pouting despite the fact I just saved her life, Tough Girl insists, through swollen lips

“Teacher thaid I could have. She promised it wath safe.”

She has at least five different treats I have provided, for the teacher to use for bribery, and whatever else she needs them for. I grew up with four sisters and three brothers under me, I know the power of snacks to get kids motivated. The teacher’s excuse?

“I read the label, no milk.”

She’s not even allergic to milk. I mean, of all the things. You could give her beef jerky, peanuts ( she’s not allergic but I feel too nervous sending them to school, us allergic moms have to stick together) pretty much anything that wasn’t fruit flavored or made of bits of popped balloons. She somehow managed to pick the single worst snack for TG that she possibly could.

I don’t think there’s any way I can send her back to that school, but I don’t know what choice I have. I have no husband. I have to work. I have an understanding boss, but I don’t know if she’s understanding enough to let me take a week off work to go hunt down another school for my kids to go to.

I may just request that kiddo be put in a different room, with a different teacher.

Who knew a stupid fruit chewy could be this much trouble?

Thank Jesus for two epinephrine pens.

Thank Jesus for good paramedics, who let me ride in the ambulance.

Thank Jesus, for once, for my small apartment.

Thank Jesus for my sweet daughter.

I promise not all my posts will be this long.

7 comments:

ChupieandJ'smama said...

Oh my word, I have goose bumps reading your post!!! I'm so glad that your girl is ok and I'm so sorry she had to go through all of that (you too!!). Yes, thank Jesus for 2 EPI's and thank Jesus that you were able to get her out from that bed.
It's hard to believe that all that can happen from one innocent piece of candy. But as we allergy moms know, it certainly can.

allergicmom said...

I dread the day when I'm going to have to endure what you've just done. You're a brave woman and your kids are lucky to have you.

April said...

I too dread the day I have to use my epi pen! I show everyone that comes in contact with Will what to do, but I never know if they REALLY get it. I had to laugh when I saw this line in your post: NEVER GIVE MY DAUGHTER FOOD MEANS NOT EVEN CANDY. JUST today someone gave him a sucker without asking me. Will is 2 and has no clue what he can't have. LUCKY it was a dum dum and he can usually have them, but the fact that they thought nothing of giving him something in his MOPPETS classe that I hadn't approved blows my mind.

I know you don't know me, but I am always encouraged that I am not alone in my vigilance to protect my food allergy kidlet. When people watch me be sooo safe, they think I am nuts, but if I didn't do this, he would die. Easy conclusion for me and I hope others come around too!

Sue said...

Wow! I just found your blog through this post. Your post sent chills down my spine. We've never had to use our epi's (knock on wood) and we've so far been blessed with very good listeners in those who are left with my daughter - but it all terrifies - public school, future camps, events, etc. You're very strong and I'm so glad your daughter is ok. She's lucky to have you!

All my love, Carmen said...

Thank you everyone for your well wishes! Sorry it took so long for me to answer, I am just getting the hang of the blogging thing. Yes, people think we allergy moms are a little crazy, but if you replaced peanut(or whatever) with loaded gun (which allergens can be like for our kids) they'd feel the same about protecting their little ones too. Thank God for the internet to help us all stick together, lol.

Mamique said...

WOW! I am a bit speechless after reading your post, WOW!

I live with the fear of having one day to experience something like this.

The way you described it made it real for me, finally. It always seemed vague before.

As I laughed when you talked about your daughter running away from you (I could soo see my girl doing that one day), I started crying, really crying, when it hit me that I could sooooo see my daugter doing that one day!

I'm so sorry you and your girl had to go through that, but thank you, thank you, thank you, for sharing and giving us a glimpse of what it really feels like for the mom.

Hugs

Z-Gal said...

That is definitely high up on my worst nightmare list (which now all seem to involve something happening to the kids now that I'm a mom)... I can almost not imagine everything that went through your mind - and I thank God that I have not had to do that to my little guy (peanut allergy) yet (you better believe I'm knocking on wood as I type that!)...

I'm also thanking God that my son's school and JK teacher are hyper-anxious about letting him have anything that I haven't personally approved (even when it is already marked "nut -free" by the manufacturer). After reading this, I think I would rather have a bit of inconvenience of having to go in whenever there is something new in the line-up of treats (at least once a week) than have to endure what you have...

Funny though - until I read your posting, I had never even thought about the possibility that he might try to run away or hide from me if I had to use the pen... And I'm at a loss of what I can do to try to keep that from happening if it comes down to that, which is scary!!